Heroes For Hayes
This Sunday (3/10) The Sellin' With CC Team will be in Yulee for the Heroes For Hayes Flag Football tournament. This event was organized to fundraise money to go towards the current and future treatments of Hayes McIntyre. See Hayes's story below. This Sunday, we will be at the event selling pizza, drinks, and snacks. 100% of the proceeds will be donated to this cause. We will also be participating in the tournament with our own Flag Football Team. Please feel free to join us this weekend and gather your friends and family for a team. Adult and child teams are available to play. For more information on the event, click HERE. IF you can't make it but you would like to donate, click HERE. See you there!
"On December 4th, we took Hayes to Wolfson Children’s for what appeared to be a nerve injury. He was weak on the right side and having trouble gripping. After hours of tests, an MRI showed a mass in his spinal column along the back of his neck. The tumor was putting so much pressure on his spinal cord, it was causing weakness on his right side. He was scheduled for surgery the next morning to remove the bulk of the mass. The tumor was believed to be a benign neoplasm the doctors had seen before and even the biopsy during surgery came back benign.
On December 9th, 2017 Hayes was diagnosed with Chordoma. Chordoma is diagnosed in just one in one million people. Less than 5% of those cases occur in children.
Chordoma is a type of cancer that occurs in the bones of the skull and spine. Chordoma tumor cells arise from cells of the notochord, a cartilage-like structure that acts like building blocks for the development of the spine during fetal development. Chordoma is part of a family of cancers called sarcoma, which includes cancers of the bones, cartilage, blood vessels, muscles, and other connective tissue.
With such a rare cancer, few physicians have exposure and even fewer specialize in its care. Through the wonderful people at the Chordoma Foundation, we’ve been in touch with those amazing specialists. Hayes will see Dr. Liebsch, Radiation Oncologist at Mass Gen Hospital, on the 29th and 30th to gather new x-rays, CT, and MRI images. Dr. Liebsch will lead treatment planning and join us in Providence, Rhode Island later on the 30th to meet with Dr. Gokaslan, Chief Neurosurgeon at Rhode Island Hospital, to evaluate the possibility of removing more of the tumor. He is tentatively scheduled for surgery on February 1st should they be able to remove more of the tumor. If they are not able to, he will head back to MGH to begin Proton Radiation Therapy."